Health Care Access Research and Developmental Disabilities (H-CARDD) & Surrey Place Primary Care Tools
The Developmental Disabilities Primary Care Program (DDPCP) of Surrey Place (Toronto) and the Health Care Access Research and Developmental Disabilities (H-CARDD) program at the Azrieli Adult Neurodevelopmental Centre (CAMH, Toronto) offer a comprehensive suite of primary care tools and resources designed to support healthcare providers in delivering evidence-based, inclusive, and effective care to individuals with intellectual and developmental disabilities.
These resources, including health check tools, clinical practice support materials, and educational modules, aim to enhance disease detection, preventive care, and overall health equity for this population.
Practice Guidelines and Tools: Developmental Disabilities Primary Care Program
- DDPCP Website and Newsletter Sign Up
- DDPCP Overview at OASIS 2021 Conference
- DDPCP Primary Care of Adults with Intellectual and Developmental Disabilities: 2018 Canadian Consensus Guidelines
- Canadian Family Physician, Special Issue 1 of Primary Care of Adults with IDD (2018)
- Canadian Family Physician, Special Issue 2 of Primary Care of Adults with IDD, Care later in life (2019)
Key Clinical Practice Support Tools (to be used in collaboration between Developmental Services & Primary Care)
- About My Health
- My Healthcare Visit
- Health Monitoring Charts
- Healthcare Transfer Plan
- My Coping Tool: How I Deal with Stress
Key Clinical Practice Support Tools for Primary Care Providers
- Periodic Comprehensive Health Check for Adults with Intellectual and Developmental Disabilities
- Decision Making in Health Care of Adults with Intellectual and Developmental Disabilities: Promoting Capabilities
- Initial Management of Behavioural Crises
Key Publications
- Research Article: Barriers and facilitators for different stakeholder groups to the uptake of the IDD Health Check: McNeil, K., Achenbach, J., Lawson, B., Delahunty-Pike, A., Barber, B., & Diepstra, H. (2024). Towards developing an intervention to support periodic health checks for adults with intellectual and developmental disabilities: Striving for health equity. Journal of Applied Research in Intellectual Disabilities, 37(1), e13169.
Research: Health Care Access Research and Developmental Disabilities (H-CARDD)
Tool kits: Canadian Guidelines for Primary Care for Adults with Developmental Disabilities
- Implementing Health Checks for Adults with Developmental Disabilities: A Toolkit for Primary Care Providers
- Family Matters Tool Kit
- Nuts and Bolts of Healthcare Tool Kit
- Azrieli Adult Neurodevelopment Clinical Innovation and Tools
Key Reports and Publications
- Summary of Proceedings: Making the Invisible Visible’ H-CARDD Provincial Meeting, February 23, 2016
- The Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario (2013)
- Addressing Gaps in Heath Care Services used by Adults with Developmental Disabilities in Ontario (2019)
- Additional Population-based Research Reports
- HCARDD Snapshots: Concise two-page summaries highlighting the key aspects of H-CARDD research findings or projects.
Education
ECHO Ontario Adult Intellectual & Developmental Disabilities (AIDD) addresses the intersection of intellectual and/or developmental disabilities (IDD) and health in adulthood. This includes a program on mental health, one on mental health and autism, and one on brain health and aging. Programs are free, six weeks long, and open to both health and social service providers.